APWoman cares for 3 family members with Huntington's disease
By GILES BRUCE The (Northwest Indiana) Times, Mar 26, 2018
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Cindy Rogers doesn't remember the last time she slept more than four hours in a row.
Twenty-four/seven, 365 days a year, she is the primary caregiver for all three of her adult family members: her husband, son and daughter.
She makes sure they are fed, bathed and clothed. She takes them to doctor's appointments, as many as 25 a month. She helps them be as functional as possible.
It's not an easy job. The three have Huntington's disease, a degenerative neurological condition that Cindy calls like having "Alzheimer's, ALS, Parkinson's, muscular dystrophy and cancer all at once." People with the disorder have involuntary movements, and eventually lose the ability to eat, speak or walk on their own. Life expectancy after onset of the disease is between 10 and 30 years.
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