Takes place Saturday, November 12th at Half Liter BBQ
Indianapolis, Indiana (October 11, 2022) – The Indiana Chapter of the Huntington’s Disease Society of America (HDSA) will host the Indiana Celebration of Hope on Saturday, November 12th at 6:00 PM at Half Liter BBQ. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
“We are excited to be gathering in person this year to honor Sara Smouther and the late Matt Weeks,” said Emily Yohler, HDSA’s Indiana Chapter Secretary. “They exemplify living their lives to the fullest and not letting anything, even HD, stand in their way of love and sharing their life with someone. We are lucky to have them as an example of the good things that can come from HD.”
The Celebration of Hope gala is one of the flagship events organized by HDSA’s volunteer-led Chapters and Affiliates nationwide to recognize those who have made an impact in their community.
For more information about the event, please contact Emily Yohler (indiana@hdsavolunteer.org). Online registration and donation can be found at INDIANA.HDSA.ORG/COH
HDSA’s Celebration of Hope events is nationally sponsored by Teva Pharmaceuticals.
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Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA.
FOR IMMEDIATE RELEASE
Matthew Santamaria
Communications Manager
(212) 242-1968 ext. 204
msantamaria@hdsa.org